If you know a useful site that you think ought to be listed then let us know using our contact page.

Here we’ve listed useful sites related to Ebstein’s Anomaly, other heart conditions, and support for those affected.  We’re always on the lookout for anything which will help our users, and welcome suggestions for new links via our contact page.

  • Adults Living With Ebsteins Support Group This particular groups is only for those who actually have Ebsteins Anomaly.
  • British Heart Foundation Pioneering research, and support and care for heart patients, and a wealth of information on keeping a healthy heart.
  • Canadian Adult Congenital Heart Network CACH pools the knowledge of congenital heart disease professionals to help strengthen their skills and knowledge of their discipline.
  • Children’s Boston Hospital As one of the largest pediatric medical centers in the United States within nearly 400 beds, this hospital offers a complete range of health care services for children from birth through 21 years of age.
  • Childrens Heart Federation The Children`s Heart Federation is dedicated to helping children with congenital or acquired heart disease and their families in the UK and Ireland.
  • Congenital Heart Defects A British site which describes a broad range of congenital heart defects
  • Congenital Heart Disease Webring The Congenital Heart Disease Webring. Powered By Ringsurf.
  • Corience An independent european platform on congenital heart defects.
  • Ebstein’s Anomaly Foundation A site that aims to help fund research in order to advance the diagnosis, treatment and prevention of this rare congenital heart defect. This will benefit not only patients with Ebstein’s but also many others with related congenital heart defects.
  • GUCH The Grown Up Congenital Heart Patients Association supports both young people and adults with congenital heart defects.
  • Heartline provides support and help for children with congenital heart conditions and their families.
  • John Hopkins Children’s Hospital The Cove Point Foundation at John Hopkins’ University; a site with clear and concise descriptions of Ebsteins Anomaly
  • Little Hearts Matter A wealth of information on diagnosis, treatment and lifestyle issues that affect children with heart conditions.
  • Mayo Clinic Mayo Clinic is a not-for-profit US medical practice dedicated to the diagnosis and treatment of virtually every type of complex illness.
  • The South West Children’s Heart Circle The Heart Circle is a support group trying to help children and their families, before, during and after cardiac surgery in the Bristol Royal Children’s Hospital.