There is research being proposed by Dr. Marx and Dr. Del Nido from the Children’s Hospital in Boston,  funded by the Ebstein’s Anomaly foundation, which plans to review thousands of cases of Ebstein’s in order to provide better data on how to treat the condition.

 The National Heart, Lung and Blood Institue (USA) is conducting a study called PEACE (Project on Ebstein’s Anomaly in Children).  This is a three year study looking at the genetic basis for Ebstein’s anomaly and will be carried out in the Ukraine.