Hi,

My unborn daughter has been diagnosed with EA, My wife will deliver in 5 weeks ( 29th of April ) at Bristol Hospital, UK.

The baby will need either open heart surgery for a blalock-Taussig Shunt to be placed or key hole surgery for puncture and ballon catheter to open valve  due to pulmonary atresia.

Does anyone in this site have experience with these procedures? Did you have a natural birth? did you get induced or opted for caesarian section?

We are seing the consultant in a couple of weeks. What questions should we be asking?

Thank you for your replies and apologies for the blunt post. My brain has overloaded.

Posted by mao.
 

1 Comment »

  1. We were unaware of our sons EA until after birth. We had him at a birth center all natural 23 hour labor. He was then transferred to a local children’s hospital. He was diagnosed with severe Ebsteins. He had a bt shunt at 5 days old then hemi fontan at 6 months and will have the final fontan at 1 half. Are you on facebook? There is a great community on there. I’ve seen a lot of people that say you don’t know exactly what needs to be done till birth. Look into Dr Dearani at Mayo clinic he’s the best with Ebsteins and I’ve only seen wonderful things about him performing the cone repair. Many people come to him from the UK and all over. You can send records and do phone consultant as well so you don’t have to travel unless you decode to do surgery. Any questions just ask. And my son Is doing amazing he has had no issues at all and he is on no meds.

    Comment by Laura — March 28, 2014 @ 11:24 am

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