Raising Awareness

Because Ebstein is so rare very few people have heard of it, and even fewer really understand the issues surrounding it so we need to spread the word. If you are a medical practitioner then please:

  • tell those affected/relatives about our site, particularly if they have just been diagnosed
  • leave leaflets in your hospital clinic

Contact us to arrange for some leaflets.

If you are a person with Ebstein’s (or a relative/friend) then you could:

  • take some of our leaflets to your clinic
  • tell your Doctor or others diagnosed about us
  • Ask the clinic to give out leaflets and have them available in the waiting room.

Contact us to arrange for some leaflets.