The Ebsteins Society is 2!
03/03/11
We’re pleased that The Ebsteins Society is two years old and we’re going from strength to strength!
Just two years ago, Caroline and Tim launched www.ebsteins.org to the world and since then we’ve grown to a fully fledged charity and arguably the leading source of information and support for those affected by Ebsteins Anomaly. We’ve had a huge impact due to your support, postings, comments, and help. Here are some of our acheivements so far:
- Coordination and part-funding of bringing expertise on the cone technique to the UK
- Better understanding of the cone technique to several UK heart surgeons
- Raising of thousands of pounds to enable our work
- Worldwide, multi-lingual support forum sharing experiences
- Over 2,500 page hits per month and rising
- 306 members
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