We’re pleased that The Ebsteins Society is two years old and we’re going from strength to strength!

Ebsteins.org is 2 years old

Happy 2nd Birthday The Ebsteins Society

Just two years ago, Caroline and Tim launched www.ebsteins.org to the world and since then we’ve grown to a fully fledged charity and arguably the leading source of information and support for those affected by Ebsteins Anomaly.  We’ve had a huge impact due to your support, postings, comments, and help.  Here are some of our acheivements so far:

  • Coordination and part-funding of bringing expertise on the cone technique to the UK
  • Better understanding of the cone technique to several UK heart surgeons
  • Raising of thousands of pounds to enable our work
  • Worldwide, multi-lingual support forum sharing experiences
  • Over 2,500 page hits per month and rising
  • 306 members
Posted by Tim.

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