Would you be willing to share you story?  The Ebstein’s Society is looking for volunteers who would be willing to share their experiences through the media.

The Ebsteins Society is preparing a press release for the general media as part of our ongoing work to promote improved diagnosis, knowledge  and intervention.  Many of the society’s members have shared their experiences on the website and this has provided a huge level of support for others with the condition.  It has also helped share information and promote awareness.  Now we’d like to take your message out to the wider world.  Perhaps you’ve had a replacement valve, or you’re awaiting surgical intervention, or you’ve choosen to live with the condition.  Whatever your story, we’d like to hear from you.

Please contact us if you’re interested.