Daughter Diagnosed in Feb 2010
27/12/10
I am looking for some advice as feel very unsure what the future holds! Georgina is 3yrs and was diagnosed in Feb after many trips to hospital. She has been a very sick child and is now under the care of Great Ormond Street. she is seen every 8weeks and things have started to worsen! she has now developed an irregular heart beat. She has been put on medication but I can’t get her to take it (even tried hiding in food). She is very anxious about hospitals and I’am finding it a real battle to do the best for her. Her consultant has said he wants her to take the medication to buy us time before they do the valve repair but he is now worried her heart may be tiring as she has prollonged episods of fast heart rate which they are trying to controll
I was just looking for some who has experienced any of the above and can offer me some help.
Alex x
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Hi Alex
Sorry to hear your daughter has been very ill. My daughter with EA started getting episodes of arrythmia at 6months so she is used to taking medicine, I know it must be much harder to try and introduce it at age 3 when they are able to refuse. We always put it in a syringe (used to have to crush a tablet and add it to water) but now we have a syrup. She takes it 3 x a day and one of those doses is at night so we just give it to her in her sleep and she doesn’t wake so you could try that. Also don’t know if she is old enough for bribery ie sticker chart with the promise of a toy if she takes it for a week. It is hard because I know one of the medicines my daughter had to take for a bit was a really horrible taste. Good luck
Comment by Amanda — February 9, 2011 @ 2:47 pm