My Baby Girl
23/07/09
My babygirl, Ellie, was diagnosed with Ebstein’s in utero about 3 days before her due date. She was born via emergency c-section. She spent a few days in the Neonatal Intensive Care Unit for monitoring and an eating issue. Now, at almost 10 months, she is just like any other baby. Her cardiologist prescribed her Enalapril. I have done some reading up on the medicine and everything looks good. What I was wondering is if we should limit her sodium and cholesteral intake. Any information would be helpful.
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Hello all My name is Jessie and my son Tyler was diagnosed with ebstein, before he was born, I was due june 14th 2009 and my last ultrasound they had seen he has an enlarged heart. they took him three days later. He was rushed off to A.I Dupont childrens hospital There they have a procuder called Norwood procdure. Its 3 major surgeries he has to go through. One when he was first born, they put a shunt in for his blood to circulate the right way, Next he will have one at 6 months then one years old. I am so happy to have found other people out there with the same thing. I would love to talk to all of you because I know exactly what your going through, Tyler was hospitalzed for 2 and half months and now is HOME hes on alot of medications and a feeding tube but LOOKS ABSOUTELY great! I know its hard to understand all of this, I was told he was not going to make it if he didnt have surgery. then I was told after the main surgery the first 24 hours are the toughest, his body has to accept a forgien object in it. I want you all to know I am here for you all, My email address is jessie_devault -at- yahoo.com I would glad to give out my street address for you to write or ever my phone number, I have met such amazing people out there, and I want to give back!! Hang in there!!
Comment by Jessie Hughes — August 22, 2009 @ 3:40 am