HELP
27/12/10
We were just diagnosed yesterday. My daughter in law is approx 22 weeks with our first grandchild. she has an appointment with a cardiologist on Friday. so many questions????? I’ve been on the internet non stop and this site is the only one I can understand. Our grand daughter not only has ebstiens anomaly there is a possible club foot, extra fluid on the brain and the doctor wants to check chromosomes. Are these other symptoms or abnormalities apart of ebstiens anomaly? What questions should we ask the cardiologist?
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Here is another website that is easy to understand.
http://www.pted.org/?id=ebstein1
Good luck!! My daughter has Ebsteins and it was a shocker when it was diagnosed. I thought it was a death sentence, but you would think she was completely healthy unless you knew different. The problem with ebsteins is that it has a wide spectrum of severity and a lot of it is a wait and see. You have to wait and see how the heart compensates as the body grows. Just remember that not all hope is lost, my daughter is the love of my life and I wouldn’t change her for the world!!
kathleen
Comment by Kathleen — December 28, 2010 @ 1:33 am