New to site
25/09/09
Hi. My name is Miranda and I’m new to this site. I am 22 years old and have had two tricuspid valve replacements. Is there anybody else out there with more than one replacement?
5 Comments »
RSS feed for comments on this post. TrackBack URL
[translation]
Hello Miranda
My name is Sandra Calumby. I’m 52 years old and would like to exchange experiences with people with same problem as me. I live in Brazil in Belem do Para I have surgery scheduled for September in São Paulo with Dr. José Pedro da Silva.Gostaria contact with adult operated or not.
Sandra
[original]
Olá Miranda
Meu nome é Sandra Calumby. Tenho 52 anos e gostaria de trocar experiencias com pessoas com mesmo problema que eu. Moro no Brasil em Belém do Pará. Estou com cirurgia agendada para setembro em São Paulo com o Dr. José Pedro da Silva.Gostaria de contactar com pessoas adultas operadas ou não.
Sandra
Comment by Calumby — June 17, 2010 @ 4:42 pm
Hi Miranda,
My name is Rebecca I am 22yrs old I was diagnosed with EA at 18yrs, that was when I started getting the symptoms.Especially the SVT causing syncope’s , shortness of breath etc…. I had two perfect labors with no complications. They are both healthy but still closly monitored. I havn’t had any type of surgery done for my EA, just a bunch of tests. I was told by the my cardiologist that I didn’t need any surgery now. But that I should in the future.How did your valve replacement work for you? Is it worth it?
Comment by youngmom — August 11, 2010 @ 9:06 pm
My wife is about to get her second one at Mayo Clinic in the US.
Comment by Stephen — November 14, 2010 @ 4:37 am
My husband, who is now 41, received a pig valve replacement in his early twenties. At that time he was having shortness of breath. He bikes and works out almost every day now. I would say it was a benefit. He had his operation done at Mayo as well. We see Dr. Wu at Boston Children’s Hospital in U.S. every year to keep an eye on everything. He says my husband is stable even after 20 years. He will most likely need it replaced within 5 years we are told though. You wouldn’t know my husband has any issues except for some circulation issues (cold hands and feet, and some thrombosis of the legs.) Hope this helps.
Comment by Lynnette — December 20, 2010 @ 10:36 pm
I’m sorry I haven’t been on here in a long time! A lot more people now! I have had two triscupid valve replacements. One when I was 18 months old and 18 years old. I didn’t have much of a choice but I’d say if you need it then yes it is worth it. I now am married to solider (deploying very soon
) we have two beautiful daughters and I’m able to have more. 
Lynette- that really is reassuring to me, I’m so worried this valve won’t last long and I want to be able to see my kids grow into beautiful adults.
Comment by Miranda — March 14, 2011 @ 4:18 am