I have a Question….!?!?!?
26/03/11
For all the people that have had open heart surgery for their Ebstein Anomaly… Were you a sick child? Did you have alot of problems? What made them do open heart surgery on you … I am just asking because I want to know what to look for in my son… I want to know all details of things so I know if I gotta get him in and be seen or if he is just normal… What are signs of things that I should watch and look for in my son? Please anyone who reads this please help me understand things that I need to know and watch for .. Oh yeah and I seen some post about the tummy time… My son also does not like tummy time at all .. So I do other things with him to help him learn he is 4months old and he can hold his head up he can sit on his own and when he is on his tummy he gets really mad and he pushes himself backwards … he loves to play when he is awake he is full of energy but he wears down really fast… but I heard that it is normal for him to be more tired then normal babies his age… Thanks for all the help and support…
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Hello, I have an eight year-old boy with ebstein anomaly who was diagnosed at the age of 2 months. Currently visits cradiologist twice a year. He was on digoxin until last year which we ( mom and dad) decided to stop it on our own. He is doing so much better than before. I remember he did not like tummy time as well when he was 4 months old. Other than that he is a normal child unless you look at his xray. He had what doctor called it gigantic heart at 2 months old. You dont expect it will shrink. But he is extremely fine for the time being. Regarding surgery, we are quite reluctant at the moment. We just want to wait and see.
Comment by nora — September 7, 2011 @ 5:49 am