Excellent website
24/03/09
Hi
I am finding this site really useful, and am really grateful for it. Now I can tell friends what Emmeline has and they can look it up. Its also good to read about other peoples experiences. Will there be more info about fundraising opportunities?
Katy
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Hi, Congratulations to the site owner for this marvelous work you’ve done. It has lots of useful and interesting data.
Comment by jedAncedy — June 6, 2009 @ 2:49 am
Hello to All,
I am new to this site and would like to thank the site owner for such real-world thoughts and opinions of Ebsteins Anomoly, especially to its management. My wife and I reside in Italy and in the process of adopting a 2 year old child who has EA and ASD. Not knowing the depth of the condition, this site has provide a lot of hope to help us evaluate the severity of the child’s condition and how we can treat or manage the condition, with the hope of finalising the adoption. Thanks also to those individuals who have contributed their thoughts which have helped enormously.
We are in the process of consulting with specialist pediatric heart surgeons in Italy for their opinion to allow us the options of how to move forward.
Much gratitude and thanks to all,
Ing. Steve Yue and Dr. Gabriella Rolli
Comment by Steve Yue — November 26, 2009 @ 6:31 pm
Thank you so much for such lovely comments. It is very gratifying that you feel the site has been useful, it really does make it feel so worthwhile. I hope that the adoption process goes smoothly, and please do keep in touch with us.
Caroline
Comment by caroline — November 26, 2009 @ 11:03 pm
Hello Caroline,
It has been 3 years of exhaustive bouts patience and frustration. Now with the prospective of an adoptive child with EA and ASD, though originally diagnosed as being a mild case. We are in search of further expert opinions. In Italy is is difficult to located or find specialists, in fact, the first medical report did not give us the confidence of an accurate report by an experienced doctor. We are now expanding our reach back to England to obtain further evaluation from pediatric surgeons.
Your website has been key to providing us the confidence to see the situation through to the ultimate end and hopefully to make the right decision to provide a child with a future and a family. This is our goal.
Steve and Gabriella
Comment by Steve Yue — November 28, 2009 @ 9:56 pm