Welcome to the Ebsteins Society discussion pages – a place to share your experiences and learn from others. Many of our members find both help and solace in these pages and we hope you do too. The intention is that these discussions share meaningful fact-based experiences that help move our understanding forward. Our Facebook page is also available for more general chat.
We’ve split the discussion into the following topic areas:
- Mums and babies
- Newly diagnosed
- Challenges for the UK
- Site feedback
“Thank you for setting up this site. It’s been fantastic to know that I’m not on my own “
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