letsbeatebsteinstxtThe Ebsteins Society performs vital work in research, treatment and support to those affected by this disease.  The society has three aims:

  • To work towards the eradication of the disease.
  • To promote best treatments worldwide.
  • To  provide a place to share [post=”2″ text=”information”], learn from the [post=”16359″ text=”experiences of others”], and [post= “459” text = “raise awareness”].

The Ebsteins Society is for everyone affected by Ebsteins Anomaly – a single organisation unifying support across the worldJoin us and enjoy the benefits of being a member and help beat this disease.   Learn more about [post=”71″ text=”The Ebsteins Society”].


We are the leading charity for the congenital heart defect Ebsteins Anomaly
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2nd tricuspid surgery?
31 October 2014
Wanting information
30 October 2014