The Ebsteins Society performs vital work in research, treatment and support to those affected by this disease. The society has three aims:
- To work towards the eradication of the disease.
- To promote best treatments worldwide.
- To provide a place to share information, learn from the experiences of others, and raise awareness.
The Ebsteins Society is for everyone affected by Ebsteins Anomaly – a single organisation unifying support across the world. Join us and enjoy the benefits of being a member and help beat this disease. Learn more about The Ebsteins Society.
We are the leading charity for the congenital heart defect Ebsteins Anomaly
LATEST NEWS
Ebsteins Society Website outage
29 March 2015
New look to the Ebsteins Society
22 May 2014
Massimo and Patient on BBC Radio Bristol
23 February 2012
LATEST POSTS
Belated diagnosis of Ebsteins Anomaly
29 March 2015
2nd tricuspid surgery?
31 October 2014
Wanting information
30 October 2014